PLEASE VOTE for my music program! :)

Hi Everyone!

My music program Grow and Sing Studios was once again nominated for the Nickelodeon Parent's Picks awards and we must defend the title!!!! Competition is fierce this year! :) You can vote once per day so please just make it a nice little morning ritual. Please spread the word to everyone you know to vote. You can vote from anywhere in the US and beyond!!!! Click the logo below to get there!

For Music Class
in Orlando

Love, Holly

I'm Baaaack! Here's the scoop!

Dear Blog,
I've been ignoring you and I feel bad. But I'm here now! :)
Love, Holly


Hello Everyone!!!

It's been a while. Life just sort of gets busy. But I really want to update everyone on what is going on. You can rest assured that in my case, no news is usually good news!

A couple of weeks ago, we did have our pediatric neurologist appt. for Aiden. We have officially stumped the most well respected pediatric neurologist in the state of FL! All of Aiden's tests have come back normal and despite the initial prediction that the neurologist had, he now acknowledges that Aiden is getting better. In fact, he performed the assessment on Aiden that he did with him just a few short months ago. It was really emotional for Will and I to watch our son answer questions and do as he asked like a trooper this time --- this was completely OPPOSITE to what he was like when we first went for help. The doctor basically admitted to us that he has never seen this pattern. We all agreed that it's a blessing and while we don't have "answers", we are all thrilled that Aiden is getting better. We are scheduled to monitor and return back in 6 months... but the best we can do for Aiden at this point is what we are doing - special school and speech therapy! He's rockin in speech therapy and LOVES his speech therapist "Miss Jane".

Aiden did receive a progress report at school this week. We were thrilled when we read it.
"Aiden is adjusting well to his new classroom and is starting to interact with his peers on a more frequent basis. Aiden has been using his words more when communicating expressively and answer questions receptively. Being around peers that talk frequently seems to increase Aiden's occurrence of verbal behavior. Aiden enjoys music and story time and loves pretend play. With continued hard work, Aiden should be able to meet his goals."

Halleluah!!!!!!!

While on the subject of progress reports, Anna also received her report card (3rd quarter). This is MY blog, so I'm going to brag!!!! Anna received all "S" which is satisfactory (the highest she can get) and had the following comments:
"Anna currently knows 100% of her high frequency words and is currently reading 154 words per minute. Anna continues to excel is all subject areas and is actively participating in classroom discussions. Keep up the great work!"

As a point of reference, children in her grade are expected to read 55 words per minute by the end of the school year. What a bookworm!!!!!

Things have been going very well the last month or so. I sort of made it my mission to exercise more. I've been faithfully going to the gym for over a year, but felt I needed to do more, so I've been running also. I'm up to 3.2 miles.. also doing pilates and other things to keep it interesting. I'm feeling good and it's nice to focus on me for a while each day before focusing on the hustle and bustle of pick up lines, grocery shopping, lesson planning, teaching, cooking. :) Bathing suit season, here I come!

We had a nice Passover this year. It was my first year cooking and hosting our family seder. Dori and crew were on a cruise that week, so it was my mom and Jerry, Cousin Meg, us, and our friends the Joachims. Here's few pics:

Here's a picture of the table before the seder, including the seder plate I painted

















Anna and Amy reading the 4 questions together

















Here I am reading the story of passover in the style of "the rugrats". :)
















Last weekend we decided to take the kids to Seaworld. They now have an easy pay plan, and so we now have a family pass for the next 2 years. I'm guessing there will be a lot of Seaworld pictures posted to the blog in the future. Here's a start!

Me and my girl

















My men
















The manatee exhibit was a hit with both kids. Here is Aiden cracking up at the manatees. He couldn't stop laughing.






















and here is Anna proudly posing with her manatee webkinz in front of the manatee trees.
















We are heading down to plantation to visit Will's parents this weekend. I'm sure some pictures will be taken.

I can't believe we are nearing the end of the school year. I have 3 weeks left of my Spring Kindermusik session, which then leads me into a month or so break. ahhh... I will be going on my annual Mom's weekend in May. Yay!! We are going to the Hard Rock Hotel and Casino is Hollywood, FL. I will be running a whirlwind of Kindermusik summer camp and then after that we plan to go up North for a family vacation to Philly, NYC, and the mountains (Bellasylva). For everyone reading from up there, we'll be there the first week in August!!! At least 10 days worth! :)

Alright, heading to bed.

Oh, one last thing - major congrats to two of my best friends who both had babies over the 10 days! Carrie and Elisa (and their hubbies of course) - I love you both so much and can't wait to meet your precious sons!!!!!!!!!

Okay, now I'm going.
Love to all ---
Holly

Cathing up once again!

Hello faithful readers,

Sorry it's been a bit of time since I've posted. Seems like such a long time ago now since that last update. A lot has happened that has just kept me from sharing, but today feels like a great day to catch up.

Last week was sad for me as I found out that my great Uncle Al passed away. He was so special to me (and everyone in his life) and he will be so missed. I have so many wonderful memories of Uncle Al, including but not limited to his talking banana trick and magic that he did for us kids. Not sure if Aunt Gladys reads my blog, but I want her to know I love her, and miss her and really hope to see her when we go up North this summer.

Also my love goes out to my Uncle Scott, Aunt Bonnie and cousin Meagan (and family) as they go through a really hard time right now as Uncle Scott battles cancer here in Orlando. I love you all and am here for you with whatever you need.

On the Aiden front -- Aiden is doing REALLY well with his speech therapy. Each week he improves on things that according to the therapist usually takes children months if not years to acheive. His situation just continues to be incredibly strange. But, he's improving, so HEY we'll take it!

Aiden started his new school at UCP this past Monday. He's adjusting really well to his new environment. The teachers are wonderful and Will and I really feel he's in the wonderfully safe and theraputic environment in which he needs right now. He's definitely a bit "shy" speech wise in school, but that is to be expected on week 1. The speech therapist at the school seems great, and we are excited that both the school and private therapists are going to work together (via email/phone) to be sure they are on the same page regarding Aiden. He's such a unique case so I think they are probably thrilled to be able to discuss and strategize together! A new and exciting development came about this week that we weren't expecting. Aiden had originally qualified for "Part time" school which was 1/2 day, 4 days a week. So we thought he was going to go just Mon-Thur 8:30am - 11:30am. Well.. it seems once you are IN the program, they can adjust things a bit. We were offered FULL TIME SCHOOL for FREE for Aiden. WOW!!!!!! Now, I'm not quite ready to let Aiden go full time, especially since he's still getting private speech therapy. So we settled on a schedule that works great for all of us. Mon/Wed until 11:30pm (and then go to private speech with me). Tues/Thurs until 2:30pm, and Friday is OFF to spend with me! We are really excited about this schedule and the fact that this is an option. We are so impressed by the resources being provided to us for our little guy!

On the medical side -- we have an appt. with the pediatric neurologist on March 31st. We'll go over Aiden's latest bloodwork, and discuss what to do next (or what NOT to do). All signs really point to Aiden having a mini-stroke that night. We have been doing a bit more reading and thinking, and it's quite possible that if it was a stroke, that by the time we went in for the MRI (which was about 3 weeks after it happened) it wasn't traceable. Again, just another theory.. but who knows? All we know is Aiden is healing every day, and we are SOOOOOOO thankful for that. I honestly didn't know if I would ever have my son back to the way he was. So, this is just a miracle to me. Please keep praying that whatever it was that happened doesn't happen again, or pray that we find out what it was so we can prevent it from happening again. Thank you.

Since Aiden is doing better, and we still want to keep things as normal for the kiddos as possible, we have been doing some fun things. We took the kids to the Orlando Repatory Theatre to see the play "If you give a pig a party". They loved it. In fact, Aiden was so excited that he couldn't resist labeling everything out loud during the play. "oh my, there's a bicycle!", "oh my they are eating ice cream", etc etc. It was darn cute! Here's a couple pics from that day:


































Last weekend, Will was working at a wedding, so we went over to my sister's place to hang out. We all went to a park and then back for some swimming...





































We were invited to a fun birthday party of one of my Kindermusik families last weekend, and I have some fun shots from that. Thought I would share!







































Also some park pictures at Lake Eola.. we took some on my phone, which I haven't quite figured out how to get to my computer, but also a couple taken with the camera for the batteries ran out...

































I had the chance to get out and see my girlfriends last night.. which was VERY needed. We took a pic (of course).

















Looking forward to the coming weekend and seeing Molly and Alan (will's parents), along with friends. I'm also in crunch time for releasing my Kindermusik summer schedule. I have many people ready to sign up for summer already! wowie.

Okay, now I'm off to spend time with Aiden, as it's our Friday "off". Will suggested taking him to Chuck E Cheese.. hmm.. shall I brave it? heehee..

Have a perfect day everone!
Love,
Holly

An information filled day...

Hi everyone,

If you are still keeping up with our saga, thanks! :) We are back home from the 24 hour long EEG test for Aiden. As we predicted and expected, that test came back normal/inconclusive. So.. we still haven't yet found any medical explanation for what happened to our little guy. We will be going back to speak with the neurologist again to see where we go from here, and what further testing Aiden may have to undergo.

In the meantime, while searching for a medical explanation, we are still trying to figure out where and what to do about Aiden's options for school and speech therapy. So as I mentioned in my previous post, we were offered a spot for Aiden in the 4 year old class at the UCP Charter School near UCF. We went today to speak with them, take a tour and find out some more information.

I'm happy and RELIEVED to report that this is most definitely the perfect match for Aiden!!!!!!!!!!!

The school is a charter school, so because Aiden has qualified for special school and therapy, he can go there for free compliments of Orange County Public Schools. This school has a waiting list of 180+, and there is ONE spot available, but because we have the blessings from Orange County, we get first dibs!!! How crazy is that?

This school believes in making all their classes "inclusive". This means that 1/3 to 1/2 of the kids in Aiden's class do NOT have any special needs of any kind. Their parents put them there because they believe in teaching their children about compassion and caring for all kinds of people *goosebumps anyone?*. They state in their literature that a benefit to a child without dissabilities attending this school is that inclusion provides opportunities for children to learn that being different is acceptable and not something to be afraid of or shamed by. Wow. Some of the kids are children of the staff at UCP. Some are children of professors at UCF. Some children just have parents that get the concept of an inclusive school, and know what a great school it is. Even if Aiden gets better, and doesn't need help anymore, this is something that is truly powerful, and something I WANT Aiden to learn about. The class has 15 children, and 3 teachers. So.. on a full day with perfect attendance.. the ratio is 5:1, which I think is pretty phenominal.

The teachers and therapists work together so that Aiden's "care plan goals" will be worked on by a team, and will be well integrated into his day. As I mentioned in previous posts, Aiden qualified for free GROUP speech therapy 2x per week for 30 minutes. Well, UCP will provide Aiden 1:1 therapy if they believe that is what he needs (still free to us), but also use the "group therapy" concept if it works for his goals. Basically they will do what is best for Aiden.

The school will give us a written report of Aiden's progress and what they worked on with him EVERY SINGLE DAY when we pick him up. I think that is amazing! Also, there will be a meeting offered to us every 3 months with Aiden's teachers, speech therapist, the director and us to go over Aiden's goals, how he is doing and what changes or adjustments need to be made to his goals, basically assessing where Aiden is developmentally every 3 months, verses the once a year we would get at the public school. WOW!

The class follows a daily schedule of course, but what I LOVED was on the door an newspaper article was posted. It discussed the fact that public schools (especially at pre-k) age aren't encouraging physical activity at school. In fact, that is one of the reasons we knew we would NOT be sending Aiden to Bonneville Elem. We were told at Bonneville when we toured there that there is no playtime, all academic (at 4 years old????). At UCP, Aiden will have playground time (which is amazing for socialization and speech), and then also in his day will be "walking" time. WALKING time! I LOVE THIS. I mean, how often to do you find a school that IN their curriculum they encourage taking a WALK as a group. Walking, talking, looking, exploring, socializing, smelling, and the list goes on. I don't know why, but this really touched me. Aiden's class also gets MUSIC THERAPY once per week. Umm... you think I like this? How absolutely AMAZING!!!!!!

In August, their new facility will open. This is a brand new state of the art facility with double the classrooms all the way up to Grade 3. It will have 2 playgrounds, indoor gyms and much more. We do hope and pray that Aiden does well over the next year and a half or so, and can go to Kindergarten at East Lake Elementary School where Anna goes, BUT.. if need be, this school will be there for Aiden.

So... we called Orange County Early Intervention to let them know that we have found the perfect match for Aiden, and the paperwork is in motion. We plan to have him start at UCP on March 17th. He'll go Mon-Thur from 8:30 - 11:30am. Afternoons and Fridays are for private speech therapy and MOMMY time!!!!

As of right now, we go back to the neurologist at the end of March to discuss the results of Aiden's latest bloodwork, and talk about what to do next.

Things are finally falling into place though and we look forward to Aiden getting what he needs to get better and caught up.

Alright, there you have the latest and greatest!

It's nice to be home, sitting in my family room with Anna and Aiden and Will. Not the easiest 24 hours, but at least we can resume the week with more normalcy. :)

Love,
Holly

The 24 hour EEG - The Day Time Stood Still

Here we sit, in the EEG room for 24 hours to rule out any seizure activity with our precious Aiden. My last post was primarily about the therapy side of things, and what we are going to do regarding all of that. I failed to talk about the MEDICAL side of things. We still have ABSOLUTELY no idea what happened to Aiden. As a brief recap - we have already gone through a 1 hour EEG, MRI of the brain, blood tests. Everything came back inconclusive.

So now (as in right now) we are going through a 24 hour long EEG. The doctor also is having more blood checked for other things (lyme disease, metals, other things). If that comes back inconclusive.. Aiden is most likely going to undergo a Spinal Tap test.

All the therapists we have seen since all this started strongly feel that some sort of brain injury or trauma happened to Aiden (be it a stroke, seizure, or something else). Hopefully one of these tests will give us some answers. But I have to admit I'm preparing myself for NO answers. We may never know what caused all this. I hope that isn't the case but one must be prepared for all possibilities.

The good news is that Aiden continues to improve. His speech and communication is better and better everyday. He is absolutely 100% no longer ticking in any way. No more rapid eye blinking, throat clearing, arm flailing. Nothing. (YEY!!!!)

It would be nice to get a medical diagnosis though so we can do EVERYTHING we can to prevent this from happening again!!

In the meantime - I do have an update on the school and therapy decision. My last post talked about 4 options that we have. Well we have definitely narrowed it down. We went to Bonneville Elementary to check out the public school special needs class. Without getting into details, this is NOT an option to us any longer. We will NOT be sending Aiden there.

We JUST a few minutes ago found out that Aiden HAS been given a spot at UCP Charter School if we want it! This is HUGE news. We still haven't toured there yet, and talked with someone about Aiden's situation, but this is a VERY exciting option for us. Here's the website if you are interested in this particular school. http://www.ucpcfl.org/. What is really exciting is that a new building is being built right now and the facilities come next school year are going to be state of the art!!!! Check this out: http://www.ucpcfl.org/EO_Bailes_Campus.shtml.

We have an appointment there tomorrow at 1pm to tour and speak with them about Aiden... I'm guessing that by the end of day tomorrow we'll have our answer on what we are doing. If we choose UCP, it will be FREE because Aiden qualified through the school system AND he'll get his FREE speech therapy right there at school as well. This could be really great for him. At the same time, until we see the school, meet the people and decide if it's right for Aiden.. we will not get TOO excited.

So.. that is where we leave things for now. I'm attaching a picture of Aiden at the EEG taken with my phone so not the best quality.. but you get the idea. We are here at the EEG ALL night until the morning. Send good vibes and prayers!!!!!!!!
















Love, Holly

The Curious Case of Aiden Lesnick

Hi Everyone,

Thank you everyone for all your love and support during all this. It really means so much to us, and brings us comfort as we go through the trials and tribulations of this entire situation. Will has appropriately deemed this "The Curious Case of Aiden Lesnick". :)

Last Wednesday, Aiden started private speech therapy. For the first session, it went well, though Aiden was very reserved. However, IMMEDIATELY following the session, he started talking like crazy. More than he was. It was quite interesting. Over the weekend he continued to talk, label, and surprise us in so many ways. Yesterday (Monday) was Aiden's second private Speech Therapy session. OH MY GOODNESS what a difference!!! He was amazing. I won't describe it too much yet because I have a letter from the therapist which describes it so beautifully. Yesterday, we were sort of gearing up mentally for the meeting scheduled today (Tuesday) with Early Intervention Services. In preparation for that meeting, I thought it would be helpful if Aiden's therapist Jane wrote a brief letter detailing Aiden's weird and rapid progress. Mainly because the meeting we attended today was reporting on the Aiden they assessed 1 month ago. An entirely DIFFERENT Aiden. Here are some of the things she said:

"I have seen Aiden Lesnick for two, 30 minute speech-language therapy sessions. If I didn’t know better, I would have thought that I was working with two different children.

During the first session, Aiden did not greet me and used very little eye contact. The few words that he used were all imitated and were typical of echolalia. Aiden did not comment on things in his environment and he did not make any requests. Aiden’s attention span for tasks was very short except when we played with cars. Aiden had a very flat affect—showed very little emotion.

During the second session, Aiden came in with a smile, looked at me, and said “Hi” when he was given a prompt. When given a verbal prompt, Aiden was able to attend to tasks, name common objects, and use short phrases and sentences. Aiden made a few requests and said a few things spontaneously. Aiden’s demeanor was very different than it was in the first session. His eye contact was much improved and he smiled and clapped his hands appropriately during songs and a game of bowling."

She does go on in the letter to say that he is still speech/language delayed and will benefit highly with more help of course.

So today we went to our Early Intervention meeting. In attendence was the developmental specialist who assessed Aiden, a speech therapist, and a staffing specialist. Everyone was so warm and kind. They first reported on Aiden's results, but acknowledged that they understand he is different now. Then they read the letter that was written by Jane, our private speech therapist. With all that new knowledge they re-wrote (with us) new goals for Aiden that are more appropriate with his new skills that he has re-aquired. They explained to us that Aiden has qualifed for FREE speech therapy 2x per week for 30 minutes. He has also qualified for part time Developmentaly Delayed school. We did find out that free speech is a Group Speech environment, not 1:1. SO... we are SO happy that he is getting the 1:1 therapy already through the private practice. We intend to keep that going along with the free group therapy. We were offered two options. 1) just speech therapy - this would be done at East Lake Elementary where Anna goes to school. 2) Developmentally Delayed school at Bonneville Elementary where he would get speech during the school time. This would be 2 1/2 hours per day. Not a full day each day.

Our dilemma really is towards the Developmentally Delayed school. All the therapists agree that children learn from their immediate environment. We are concerned that if we put Aiden in a classroom with children that may have more severe delays or behavioral problems, that this could affect him negatively. At the same time, it would be a small group setting where Aiden would get WAY more attention and focus. hmm... We decided to leave the meeting without deciding yet. This means we have to go back downtown to sign the papers when we figure out what we are doing. We really feel we want to OBSERVE the actual class Aiden would be joining at Bonneville Elementary before we agree to put him there.

So, Will and I went to Panera for lunch to talk things over, and just de-compress. Sitting next to us was Anna's Sunday School teacher. She said hello, and engaged us in conversation, and asked us about Aiden. Her friend sitting opposite her contributed to the conversation by letting us know her son had serious delays a few years ago, and goes to a school nearby called UCP (http://www.ucpcfl.org/). She spoke so highly of the school, and then told us that it is a charter school, and if Aiden has qualified through Orange County (as he has) then it would be FREE to send him there! Oh my, something else to investigate and ponder. Anyone find it strange and interesting that we ended up next to this woman in Panera RIGHT AFTER our meeting at Early Intervention services. Wow! She gave us their business card which she had with her, and Will and I decided to run over there before picking up Aiden from school. We went in, and requested a referral to speak with someone there. We were told that we would be called back within 48 hours.

We picked up Aiden, who had a pretty good day today at school. He just LOVES it there. We spoke with his teacher who loves having Aiden in class, but did express that sometimes she wishes she could do MORE for him, but with the class size and her lack of qualifications that folks would have at the special school, she sometimes is frustrated. At the same time, Aiden doesn't "stand out" often in class as "different", and for the most part does very well there. We did discuss the fact that on Mon/Wed/Fri at Aiden's current school there are only 5 children in the class. So.. we could move days and have him in a smaller class setting so the teacher can work more closely with him. hmm....

While we were driving to pick up Anna from school, we got our call from UCP. 48 hours? More like 30 minutes! Wow, quite impressive!!! They asked some questions, and explained that they are having a meeting on Friday and will find out if there is currently space for Aiden. If so, we'll go in and speak with them.

We also spoke with the staffing person over at Bonneville Elementary. We arranged to go TOMORROW to observe the class that Aiden would be in if we chose this route. So.. we'll see what we think about that option tomorrow. So much to think about!

As I see it, we have 4 options:
1) Pass on the special school, keep him in his current school, and have therapy 4x per week for 30 minutes (2 group, 2 private)

2) Accept special school at Bonneville where he would get group therapy 2x per week, while continuing private therapy 2x per week.

3) If an option, send him to UCP where he would get therapy 2x per week there, while continuing private therapy 2x per week.

4) Pass on special school, but change days at his current school for smaller class size, and have therapy 4x per week for 30 minutes (2 group, 2 private)

To be honest, we have NO idea what to do. We really don't. We are torn. We are confused. Aiden is changing so much everyday, that we really don't know what would be best for him. We want someone to just give us an answer, but the fact of the matter is, there is no right or wrong answer.

If there is anyone reading this who has any information on any of this, or the different schools, opinions and feedback are welcome.

We don't want to wait too long to make a decision, but we want it to be the right one.

A side note: Anna's Sunday school teacher couldn't say enough about Anna. She can't believe after only being in Sunday school just a few weeks, that Anna virtually knows the entire Hebrew Alphabet. Anna has studied that completely on her own, and is pretty much caught up to where the rest of the kids are at who have been going all year. That's our girl!

Sorry this one was so long, but I guess I had a lot to say. :)

More soon.

Love, Holly

Love is in the air....

I first want to wish all my friends and family a belated Valentines Day. We had a nice weekend. Will and I went to one of our favorite restaurants, Colorado Fondue on Friday night to celebrate V-day. Here's a picture before we left.





















We had quite the family weekend after that. First a birthday party to go to. Then we went to visit my mom, where we of course had to pratice our Guitar Hero skills. Then we took the kids for some Valentines Day ice cream.



























































Then on Sunday, Anna and I had a date at the Orlando Repatory Theatre to see "Junie B. Jones and a little Monkey Business". I buy season tickets for her and I each year for shows I think she'll enjoy. This one was a sure fire hit! And.. the most exciting part.... Anna has always been quite tentative and shy to go meet the actors for their "meet and greet" after the show. She told me a few months ago that when she turned 7, she would do it. Well, this was the show she decided to go for it. So, after the play was over, we waited in line to meet "Junie B. Jones" and got a picture.



































Sunday night we had our friends over for dinner and hanging out so that was fun!

The week has begun and on the Aiden front, we are scheduled to start speech therapy tomorrow. I'm SOOOOO relieved and look forward to getting started. I spent a whle on the phone with our therapist today and she seems quite baffled (along with everyone else), but also very excited to meet Aiden and help him the best she can. :) YEY!

Well, I believe that's all I've got for now! Until next time!

Love,
Holly

A few more birthday pictures

A friend just shared some pictures that she took at Aiden's birthday party. Thought I would post here. :) Enjoy!

more on the Aiden front....

Okay, I have some form of an update on Aiden.. I'll address that first, and then share some pictures from his birthday party.

Today we took Aiden back to the private speech therapist to try again for that initial assessment. Aiden was definitely more willing to work today, thank goodness. The first 10 minutes he sat pretty quiet and shy.. then he started to open up and answer questions, or at least point to the pictures, etc. There was a period of about 15 minutes where Aiden was doing great. He even spoke in 4 and 5 word sentences to the therapist. We were really happy about that because she could really hear his speech. She also just observed him in general and noted that he makes great eye contact, smiles and interacts, follows directions for a period of time, and scans the pages well to find the correct answers. He did not tick AT ALL, and hasn't been for a bunch of days now.

At the end... she talked to us, and we realized we have THREE different things we are looking at:

1) She concurs that whatever happened to Aiden a month ago is medical. She feels this is pretty obvious, which is the same thing the other therapists said at our other assessment. So, we must push forth with trying to get some answers that way. The 24 hour EEG is in our future, more bloodwork, and a possible spinal tap.

2) Regardless of what is going on medically with Aiden, she feels he should be assessed by a behavioralist. Why? She thinks Aiden is possibly CHOOSING to not answer questions at times and choosing when to comply and not to comply. She said Aiden displayed today that he knows the answers in his head. What does this mean? Well, that Aiden is strong willed, and if something seems "hard", he just says "forget it" and would rather not try, and gives up. She thinks a behavioralist could really help us with this area.

3) Today the therapist let us know that Aiden's speech is FINE. She said his speech is completely clear and intelligable, and the few letters that he struggles with are completely age appropriate. Yey, great news! BUT.. she said his area of struggle and delay is in the language/communication area. So this still falls in the realm of needed Speech Therapy - just not specifically to work on his speech, but more so how he processes his thoughts into forming his language. (hope this makes sense). Again, this goes back to helping his behavior from his frustration.. so we can get somewhere on this end.

So... we are going to set up a HOME assessment with a behavioralist. Apparantly this team also has a psychologist on the team as well, so if we need that it's there for us. Unfortunately, this is the first "service" that is NOT at all covered by insurance. Scary.. but we will figure something out.

As I have said before, right now we are watching Aiden in developmental fast forward. This kid is catching up on what he lost each and every day. He is "recovering" from whatever it was that happened to him. We feel SOOOO blessed by this. The question is WHAT HAPPENED?? This is truly the scariest part of this whole thing.

Okay, so Aiden's birthday party. A few weeks ago, Aiden wouldn't have handled it very well. But WOW did he have a good time. He got right into the spirit. He greeted some of his guests by name (his greetings and salutations are coming back, yey!). He sang along with every song I did. He danced, played with his friends, sang along to Happy Birthday, blew out his candles, ate his cake and was the happiest birthday boy on earth that day! Our friend Paul made the cake as you will see below. Aiden LOVES any transportation.. so his cake was a racecar. So cool!!!!! So.. here are some pictures below to enjoy. I'll be back with another update soon!












































Love, Holly

Our Aiden is four years old!

Our little boy is officially FOUR years old. We can't believe it!

On Thursday (Aiden's birthday), we had two appointments for him. The first was his 4 year well visit with our pediatrician. We were glad to be there to update him on what has been going on since he referred us to the neurologist. He is just another one that is simply perplexed as to what is going on with Aiden. Aiden however, was NOT happy to be there. I think he has finally made the association that visiting the doctor means getting poked, prodded and messed with. It was his birthday, so he had every reason to object! :) Anyway, he definitely was in a "mood".

Then we took him for his 1:30pm Speech therapy assessment with the private practice. Again, he didn't want to have any part in it AT ALL. So.... we are scheduled to try a re-do assessment on Tuesday morning. We really hope Aiden is up for it, so we can get him started on speech therapy.

Once a month Anna's dance friends and the moms go out for pizza night. It just so happened that pizza night this month happened on Aiden's birthday. Usually boys are not allowed, but we made an exception and celebrated Aiden's birthday with pizza and cupcakes!













It is now Saturday night... and today was a great day. The last few days Aiden was not really a happy camper. We didn't see him regress neccessarily, but at the same time, he was ticking a bit and very grumpy. I actually think he was a bit under the weather. Today however, was a GREAT day!! He has now started to greet certain people with hellos, he's doing a lot more talking in general. He is starting to answer questions here and there. Again definitely moving in a forward direction from where he was when this whole thing started.

Tomorrow is his birthday party which I decided to keep pretty small and calm as not to have him get overstimulated and overtired. I hope he has a good time and is up for it tomorrow. I'm doing some Kindermusik fun at the party which is his favorite thing in the whole world. So.. lots of pictures to come from the party.

I'm really hoping that on Tuesday we can get somewhere with the private therapy. So keep your prayers going because I think they are working. Our little guy IS doing better (of course we still have NO idea what is causing this).

Today we had a nice day at a local event where the Orlando Philharmonic played an outside concert of Peter and the Wolf. We met up with Rachael and her kids, and Will's parents are visiting this weekend. We had a great time, and Anna and Aiden LOVED it! Here are some fun pictures from that! Another birthday party update coming soon, and then of course more news about Aiden's tests and therapy as it comes in.





















































Love, Holly

Good day for Aiden!!!

Today is definitely a good "Aiden" day. It really is like we are watching our son in "Developmental Fast-Forward".

First, Aiden slept really well last night and woke up reasonably 0n time to make it to school. We know that when this happens, it's going to be a better day, than either a broken sleep or LOOOONG sleep (like the one he had the night his episode happened).

Aiden's teacher told me about something that happened today that shocked them. I guess the kids were asked to clean up and whoever helped would get 2 M&M's to eat. After the cleaning session and they were in their circle, Miss Kelly went to each child and thanked them for putting away this or that. She got to Aiden and said "Aiden, I didn't see you put anything away, did you?". He replied with, "I put away the doll". They were SOOO happy to hear him speak clearly, and also express himself. Of course he got the M&M's. :)

Then after I picked him up from school, we had a bit of time before we had to pick up Anna.. so I took him to a nearby playground to play for a few minutes. I told him we had to get Anna soon. He said, "I want to go play". Again, he amazed me!!!! He just hasn't been expressing himself like that at all.

Just a week ago, Aiden was barely speaking.. and now he is sporatically using 5 word sentences. wowie!!!!

He is still quite quiet most of the time, and sometimes still gets very frustrated.. but boy, what a difference a few days make. Sooooo strange that he has come this far without any therapy or anything!

So....... tomorrow is AIDEN'S 4th BIRTHDAY!! I can't believe that!! We do have an appt. with our pediatrician. Then we are going to the private therapy assessment to hopefully line up some speech therapy. I'll keep posting...

Love, Holly

Overdue for some pictures....

Just wanted to post pictures since it's been a while... things have just been too upsetting and overhwhelming lately so I had sort of stopped. But today was a good day and I snapped some photos. We went to a birthday party, and it was wonderful. The kids had a ball, and Aiden was AIDEN today. He climbed like a monkey all over the playground, swung the bat for the pinata, and didn't tantrum once because he was able to express himself verbally. Mostly Aiden is speaking with 2 or 3 words at a time. What a HUGE difference from a few days ago! :) So hope you enjoy these!

I love the 2nd one of Anna and Will on the bench. They didn't know I was snapping pics so this was just a sweet moment between the two of them.
































































































Hope you enjoy. I will continue to update on the Aiden front of course as things develop....

Love, Holly