Yesterday was just so overwhelming and we just didn't know what to think. Well, we still feel that way today...but here we are a day later, and of course have had some time to let what information we DO have sink in.
I do think all this stress and worry is affecting my immune system... as I just got home with some meds to treat a bladder infection. OUCH! I've never had one before. Not fun! I was also at the dermatologist for my routine bi-yearly check where they biospied 5 spots, 2 of which are on my NOSE. I'm currently walking around with a big bandaid on my face, and a bladder infection. Good times..
Anyway, Aiden has had another REALLY good day. He has been happy go lucky. Woke up this morning and worked on potty training. Still not having the easiest time with that. Then he proceded to pick out his clothes and get dressed all by himself. He was using a TON more words than yesterday, this time putting 2 words together. He wasn't ticking hardly at all.
So, honestly, Will and I are a bit perplexed! While Aiden has a FAR way to go to get back to where he was 2 weeks ago, and then of course move forward to catch up to age level, he is progressing along again. Regress, progress. This further makes us question what is going on with him. I mean, we know that overnight "something" happened. We now know that since that episode (whatever it was), he is getting better. This is before any therapy, AND during a couple of pretty stressful weeks for the little guy.
I'm feeling good that we are going for further tests on anything that could have physically happened with him. At the same time, we don't want to discount that this could be deveopmental delay only. It's just SO weird because from what has been observed by the doctors and us, what is affected is his speech/language. His cognitive abilites are in tact. His activities of daily living are great (aside from the potty thing). The ticks seem to be diminishing. What to think? what to think?
Well, we are VERY happy that tomorrow we'll talk with some therapists and get the perspective on that side of things. Of course we are happy that Aiden seems to be improving. At the same time, it seems odd to us that if this IS only a developmental issue that he would be improving that QUICKLY after what we call the "episode". From what we have read, that just doesn't happen.
*sigh*
Futher confusion ensues.
I'll keep updating. It feels good to blog and get this stuff out there, and through blogging we have had some really great ideas, resources and referrals from people.. so I plan to continue! Keep reading...
and now, my darling wonderful husband has brought me home Sushi for dinner. He knows I needed that!!!! I'm going to go enjoy my amazing family. :)
I'll update after the therapy session tomorrow. It's supposed to go at least 2 hours and is scheduled to begin at 12:30pm.
Love, Holly
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3 comments:
Hi Holly,
Like I mentioned in an email to you before Blaze did some episodes regulary that we were able to tape and then after the EEG nothing. He kept being himself and eventually outgrew whatever it is he was doing to make us all a CRAZY wreck. That being said, there have been a lot of people I know through mothers of preschoolers (MOPS) that have children that have been diagnosed on the "autism SPectrum" so they may not show all of the symptoms of autism just some. For expample I know 2 people that have children with Aspergers and I know 2 people with autism (the regular) if you can call it that. All 4 are boys. The one little boy is in 3rd grade now. When he was a toddler he didn't really talk to many people. Now he gets on the bus and goes he is in a regular school room etc. He just doesn't communicate to strangers, I am even a Stranger even though we live 2 houses down, he doesn't see me regularly enough to chat with me. Hang in there, they are making so many discoveries and finding whats wrong is the hard part. You are really motivated parent and whatever it is, I know you guys will find a way to make it best for him:)
Molly
I have faith that we will get to the bottom of this. In spite of it all, we love Aiden and treasure him. He is such a love and I just know that this too will be just a memory.
I support you and love you all. I'm always here for all of you.
Love, Mom
Will and Holly, You are all in my prayers daily. I think what you are doing is amazing and whatever they find, you are doing everything you can to make Aiden as successful as possible. Early intervention is the key. Proactive parents who accept what is happening and find ways to help their child see so many great results.
Have you looked into the wheat and gluten free diet. I know Jenny McCarthy swore by that and that it helped her son.
Thank you for sharing with us and keeping everyone posted. It helps when I'm thinking of you guys that I can hear what's happening right along with you guys.
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