Still no conclusive answers...

Okay, so we just got back a bit ago from the Pediatric Neurologist. The first surprise, his EEG came back normal. We were almost convinced something was going on there... We still aren't convinced it isn't.

The doctor looked at Aiden, and did some cognitive testing etc. Aiden did really well on some things, not so well on others. When asked to identify colors, animals, etc. he did great. Would he give the doc a high five? No way! (but he is giving them to us! :) )He wouldn't answer his questions like his name, age, etc. But.. behaviorly like following directions, mannerisms, etc., the Dr. acknowledges that Aiden is great. hmm...!!!

Since the weekend Aiden has been doing GREAT at home. He IS talking to us more, and not ticking quite so much.. though it's still there of course. It hasn't gone away. He is still behaving great - follows directions, etc. But is still having lots of trouble expressing himself verbally.

Okay, so what to do? What to think?

The doctor is NOT ready to rule out that something is going on seizure wise.. so Aiden is now to undergo a 24 hour EEG test, along with more blood testing. Yes, 24 hours of EEG. We are not sure when that will be yet.

BUT.. the doctor (and us) wants to be pro-active and not wait any longer to get Aiden some therapy help. We all know that with whatever is going on with him, he needs therapy and help.. so he gave us a prescription for Occupational Therapy and Speech Therapy. Yey! We don't have to wait until Feb. 10th to try to "qualify".

Will called over to Early Intervention Services, and they have us coming in on Thursday of THIS WEEK. Yey again! So.. Aiden is to start his therapies ASAP! I look forward to updating with only good news in those areas very soon.

As for what we think is going on? We really aren't sure. Will and I have to look at the possibility that Aiden is NOT having seizures, and that this is a purely developmental disorder. As we ALL know, Autism is the buzz word out there right now. Well, the doctor agrees that he exibits only 2 symptoms for that (language and ticks), so he doesn't quite fit into that description. He could very well, be on the developmentally delayed "spectrum" but be a VERY mild case. While this isn't great, it could be way worse right? We (and the doc) are not really focused in on "labeling" him. All we know is we want the very best for Aiden, and to get him the help he needs. Not in a week, not in a month but RIGHT NOW -- which is what we are doing.

So.. Therapy starting this Thursday, 24 EEG coming soon, then we move forward and help this little guy the best we know how.

There you have it! I'm hanging in there, though Will and I are having a hard day. At the same time, since we have been home has been enjoying our lovable, fun, somewhat talking Aiden who does nothing but makes us smile! :)

Love to all --- I'll update soon.

Holly